Dominic Update 4.0 – Brown Eyed Baker

Hello anyone! I simply cannot think that we are on the cusp of Labor Day and summer season coming to a shut. The final 5 to six months have been a full blur and this summertime, in unique, has flown by. There is been hospitals (chemo, stem cell harvest, operation), clinic appointments, and driving back again and forth to New York.

But, 1 foot in entrance of the other and 1 working day at a time, we are grateful to be heading into a new season with a solid boy and hearts entire of hope.

Dominic had a occupied to start with number of months of August…

🔍 Initial, he experienced a new set of scans (MRI + MIBG) moreover a different bone marrow biopsy. The scans still exhibit sickness in the course of his bones but most of the places are “dimmer” than prior to, and the bone marrow involvement lowered by around 50%.

So, there is nonetheless do the job to do, but there is an advancement. And! Dominic did equally of the scans with no anesthesia (he has been sedated beforehand due to the fact you have to lay wholly still and the MIBG is about 2 hours). He’s a rock star.

🏥 Future, he had his initially spherical of immunotherapy. The antibody he’s specified targets the protein of neuroblastoma cells and because they typically sit on nerve cells, there is important nerve discomfort accompanying the therapy. The infusion is small (45 minutes) but intense.

There is a great deal of pre-medication and agony administration in the course of and after, and he would essentially sleep the total relaxation of the day afterward. But, the treatments are outpatient so no healthcare facility stays, and they don’t affect counts like chemotherapy, so no neutropenia or blood or platelet transfusions.

🦸‍♂️ Then, he crossed off a different significant hurdle… radiation. He did this awake with no anesthesia as well… 2 times a working day for 5 times, he was strapped down using a distinctive mask that was molded to his head and higher system to hold his head and neck in the precise same position every single time (his clavicle was radiated because of to the cluster of diseased lymph nodes that had been there, as nicely as the tumor bed in his abdomen). An astounding girl who is effective there has the children pick what they want their masks to be and then customized paints them… Dominic selected Iron Person. There are some amazingly particular people today in this entire world.

He could also choose whatsoever new music he wished to be piped in every time and selected Christmas audio every single working day 💕🌲 He absolutely rocked it and the folks working there have been unquestionably phenomenal.

➡️ Next… we get to be house for a couple of weeks, then it is back to NY for a further spherical of immunotherapy, a new set of scans, and a further bone marrow biopsy. 

📘 In the meantime, he begun kindergarten this week! He’ll be signing up for class practically right up until his oncologist gives him the go-forward to go to in individual, which we’re hoping will be late September.

💈 His eyebrows, eyelashes, AND hair have all commenced increasing back again! He’s experienced a ton of electricity, has received back all of the bodyweight he lost after surgery and that final spherical of chemo and is normally undertaking definitely, seriously perfectly.

❤️ Thank you all for your ongoing prayers, it suggests so a great deal to our household.