Joyful October, close friends!
I hope you have all experienced a wonderful start out to tumble and are making the most of the cooler temperatures and wonderful tumble days.
I’m popping in currently with a new Dominic update. Thank you all so significantly for your email messages, the playing cards and gifts that you’ve despatched, and all of the prayers you have made available up our family appreciates it all so pretty significantly ❤️
The Latest Treatments and Scans
Following Labor Day, Dominic had his 2nd round of immunotherapy remedy, adopted up by a new set of scans and a bone marrow biopsy in mid-September.
We got extremely encouraging news… the scan showed that 50% of the most cancers has cleared, which is the largest shift of the needle that we have viewed so significantly.
The total-physique radioactive scan finished for neuroblastoma is referred to as an MIBG scan and it is presented a “Curie score” – 10 segments of the body are scored to 3, primarily based on how a lot cancer is current, which means the highest score it can present is 30. In Might, Dominic’s rating was 27 right after surgery and prior to commencing immunotherapy, his score was 26. Soon after the next round of immunotherapy, this most current scan showed a score of 13.
His bone marrow biopsy showed what the doctor identified as “just a trace” of neuroblastoma cells, a reduction from the previous 5 to 10%.
We pray that the immunotherapy therapies keep on to be this powerful and that he will soon be completely cleared of the most cancers that continues to be.
Upcoming Up…
Dominic will have his third round of immunotherapy the week soon after following, and then the fourth round about a thirty day period following that, adopted by yet another set of scans.
Immunotherapy, not like chemotherapy, does not bring about white counts, platelets, or hemoglobin to drop, so we really don’t have to fear about two times-weekly lab work or transfusions. We just have to have to go into clinic as soon as a week to have his central line dressing improved.
In the Meantime…
Dominic begun kindergarten previous week! It has manufactured my coronary heart so pleased to see him having fun with regular 5-calendar year-old daily life, demonstrating us the papers he’s worked on, and conversing about the very little factors that have took place during the day.
Soon after paying the past six months going back and forth from hospitals, inpatient stays for chemotherapy, surgical treatment, unlimited clinic visits, transfusions, radiation, and every thing in involving, owning some normalcy in daily life has been this sort of a blessing for him.
AND he turns 6 this 7 days! 🎉
Coming Up…
You may perhaps have observed a pair of new emails from me this last week! Thank you so considerably for the brilliant feed-back!
I’m slowly beginning to get back into the swing of factors and with a somewhat a lot more predictable routine at house, I’m hoping to carry back Friday Factors and mail you delicious recipes on a semi-common foundation once more. Stay tuned 😋